American Epilepsy Society Annual 2022 Conference - Wrap up!
Parisa and I continued to make new strong connections:
Participated in a meeting hosted by the Epilepsy Foundation for digital healthcare innovators. Jackie French, Chief Innovation Officer from the Epilepsy Foundation is planning a round table panel in March 2024 and aims to bring innovators such as Neureka together with the FDA and CMS in a round table for one day. Neureka expressed that the highest topic priority is availing additional reimbursement to epilepsy digital health care technologies to foster more innovation. I have agreed in principle to participate in the 2024 event.
Participated in a symposium hosted by Neurelis titled "Intermittent Rescue Therapy for Seizure Clusters: Hypothesis-Generating Observation of Change Across Time in SEIzure InterVAL (Time Between Seizure Clusters). Neurelis' analysis explored SEIzure interVAL (SEIVAL; time between seizure clusters) in patients from a long-term safety study of diazepam nasal spray (Valtoco) to assess SEIVAL changes with intermittent rescue therapy across time. The study included 163 treated patients. Across 12 months and beyond, a statistically significant increase in mean SEIVAL was demonstrated in patients who used diazepam nasal spray for treatment of seizure clusters in consecutive periods in a phase 3 safety study. The pattern was consistent regardless of age group, study duration, and change to concomitant medications, and with no effect on Quality of Life in Epilepsy Scores - QOLIE-31-P. More into this paper https://onlinelibrary.wiley.com/doi/10.1111/epi.17385. Big shout out to the panelists including John Stern, MD, UCLA Department of Neurology, Los Angeles, CA and to the authors of the paper incl. Vikram Rao, MD, PhD. Both John and Vikram are on Neureka medical advisory board and have joined the SUDEP Data Alliance as honorary Inaugural Members . https://www.einnews.com/pr_news/604230687/sudep-data-alliance-founded-to-develop-life-saving-interventions-for-sudep
Finally, it's been a very energizing experience participating for the first time at AES! The event was way larger than I ever imagined. I learned that the meeting typically attracts nearly 6000 participants from around the globe. The event utilizes approximately 12,000 hotel sleeping room nights; requires meeting rooms for approximately 110 education and career development sessions, and 200 in conjunction with meetings; and occupies a footprint of roughly 430,000 to 500,000 square feet!! Looking forward to next year's event in Orlando, FL.


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